My mom got Kyler this chair when he was a baby and Cinder has loved it from the beginning! Thanks mother for the perfect gift for Cinder...I mean Kyler!
We look forward to the opportunity,
1 month ago
Wednesday, July 9, 2008
Cinder And Her Chair
My mom got Kyler this chair when he was a baby and Cinder has loved it from the beginning! Thanks mother for the perfect gift for Cinder...I mean Kyler!
Maya Angelou's' Best Poem Ever
A WOMAN SHOULD HAVE …
enough
money within her control to move out
and rent a place of her own,
even if she never wants to or needs to…
A WOMAN SHOULD HAVE …
something
perfect to wear if the employer,
or date of her dreams
wants to see her in an hour…
A WOMAN SHOULD
HAVE .
a youth she’s content to leave behind….
A WOMAN SHOULD HAVE .
a past juicy
enough that she’s looking forward to
retelling it in her
old age….
A WOMAN SHOULD HAVE …
a set of screwdrivers, a cordless drill, and a black lace bra…
A WOMAN SHOULD HAVE ..
one friend who
always makes her laugh.. and one who lets her cry…
A WOMAN SHOULD HAVE …
a good piece
of furniture not previously owned by anyone else in her
family…
A WOMAN SHOULD HAVE ..
eight
matching plates, wine glasses with stems,
and a recipe for
a meal,
that will make her guests feel honored…
A WOMAN SHOULD HAVE
a feeling of
control over her destiny..
EVERY WOMAN SHOULD
KNOW…
how to fall in love without losing herself..
EVERY WOMAN SHOULD KNOW…
how to quit
a job,
break up with a lover,
and confront a friend
without;
ruining the friendship…
EVERY WOMAN
SHOULD KNOW…
when to try harder… and WHEN TO WALK
AWAY…
EVERY WOMAN SHOULD KNOW…
that she can’t change the length of her calves,
the width of her hips, or the nature of her parents..
EVERY WOMAN SHOULD KNOW…
that her
childhood may not have been perfect…but it’s over…
EVERY WOMAN SHOULD KNOW…
what she
would and wouldn’t do for love or more…
EVERY WOMAN SHOULD KNOW….
how to live
alone… even if she doesn’t like it…
EVERY
WOMAN SHOULD KNOW.. .
whom she can trust,
whom she can’t,
and why she shouldn’t take it personally…
EVERY WOMAN SHOULD KNOW…
where to
go…
be it to her best friend’s kitchen table..
or a
charming Inn in the woods….
when her soul needs soothing…
EVERY WOMAN SHOULD KNOW..
What she can and can’t accomplish in a day…
a month…and a year…
Tuesday, July 8, 2008
New Post Under MN Post
There is a new post under the Minnesota post. I am not sure why it posted under the MN post. Some times I feel I am just along for the ride.....
Minnesota Clinic
So I have some time to talk about the Minnesota CF Clinic. Here is a little background info. In 05/06 Branson was not doing very good cf wise. Starting in Oct 05 he kept getting fevers which would turn into colds and then a horrible cough. The cough starting getting worse and worse and would turn into coughing fits. Branson would turn purple during these coughing fits and it was very scary. He lost a lot of weight and would not eat. This went on for months. At the time we lived in Dallas. The Dallas cf doctors tried and tried to figure out why this was happening to Branson but came up empty handed.
He went into the hospital for iv meds but this did not help. They tried different antibiotics and this did not help either. Well I got on the internet and found a cf parent email list and found out that the number 1 cf clinic in the US was in Minnesota. I called and got the first appt they had which was in 3 months. Finally our day came and we waited in the little room for Dr Warwick. He walked in and right then Branson started one of his coughing fits and the Dr asked if he was on pulmozyme. We said yes and he said you need to get him off because he is having a bad reaction to it. We got Branson off pulmozyme (which is a inhaled med that is suppose to thin mucus and they use it as a preventive med) and the fevers, coughing fits, ect all went away. Dr Warwick in my opinion saved Branson's life at that time. Branson had been put on pulmozyme 5 months before any of the symptoms started and that is why we didn't put it together that it was the pulmozyme.
Our appt started at 9am with Dr Warwick and went till 5pm with a two hour lunch from 11 to 1. That is how long Dr Warwick spent with us at the Minnesota clinic! He tried to teach us everything he knew about cf that day. He is amazing!! He is in his late 70's and still sharp as a tack! Not only is he a doctor but he is a scientist which makes a very big difference from what I have learned. Back 40 years or so ago when kids with cf were not making it to 2 years old Dr Warwick was making people live to their early 20's. They have not lost a child or teen to cf in more than 2 decades! That is a pretty huge deal because there are still kids out there not making it to their 20's. Dr Warwick is also the doctor that invented the vest.
Dr Warwick is now retried but still does consultations which is what we did when we saw him. There are two other doctors there that have been trained by Dr Warwick. I have not met with those doctors. I feel very very lucky that we got to meet with Dr Warwick when we did! He is a very caring doctor and person! Not only did he take a full day to meet with us but he also sent us several emails to ask how the boys were doing and to follow up!
So anytime I start to get scared about cf I want to instantly move to Minnesota. The thing is Dr Warwick is not the main doctor now so I don't know how this will affect the MN clinic. Our doctor now is very very good and is very aggressive so I feel very blessed to be where we are but like I said any bump in the road and I start packing. The thing is I don't want to just get comfortable and then years down the road wish I had done more or that there was more I could of done. But at the same time I don't want to be driven by fear and up and move everyone and get down there and we just end up doing the same things there that we were here. So moving to MN has been on my mind. Back when Dr Warwick started the MN clinic had 16 patients and now has more than 500. I just wish the MN Clinic was here!
Here is a link if you want to read more
http://www.uofmchildrenshospital.org/Services/Services/c_195833.asp
He went into the hospital for iv meds but this did not help. They tried different antibiotics and this did not help either. Well I got on the internet and found a cf parent email list and found out that the number 1 cf clinic in the US was in Minnesota. I called and got the first appt they had which was in 3 months. Finally our day came and we waited in the little room for Dr Warwick. He walked in and right then Branson started one of his coughing fits and the Dr asked if he was on pulmozyme. We said yes and he said you need to get him off because he is having a bad reaction to it. We got Branson off pulmozyme (which is a inhaled med that is suppose to thin mucus and they use it as a preventive med) and the fevers, coughing fits, ect all went away. Dr Warwick in my opinion saved Branson's life at that time. Branson had been put on pulmozyme 5 months before any of the symptoms started and that is why we didn't put it together that it was the pulmozyme.
Our appt started at 9am with Dr Warwick and went till 5pm with a two hour lunch from 11 to 1. That is how long Dr Warwick spent with us at the Minnesota clinic! He tried to teach us everything he knew about cf that day. He is amazing!! He is in his late 70's and still sharp as a tack! Not only is he a doctor but he is a scientist which makes a very big difference from what I have learned. Back 40 years or so ago when kids with cf were not making it to 2 years old Dr Warwick was making people live to their early 20's. They have not lost a child or teen to cf in more than 2 decades! That is a pretty huge deal because there are still kids out there not making it to their 20's. Dr Warwick is also the doctor that invented the vest.
Dr Warwick is now retried but still does consultations which is what we did when we saw him. There are two other doctors there that have been trained by Dr Warwick. I have not met with those doctors. I feel very very lucky that we got to meet with Dr Warwick when we did! He is a very caring doctor and person! Not only did he take a full day to meet with us but he also sent us several emails to ask how the boys were doing and to follow up!
So anytime I start to get scared about cf I want to instantly move to Minnesota. The thing is Dr Warwick is not the main doctor now so I don't know how this will affect the MN clinic. Our doctor now is very very good and is very aggressive so I feel very blessed to be where we are but like I said any bump in the road and I start packing. The thing is I don't want to just get comfortable and then years down the road wish I had done more or that there was more I could of done. But at the same time I don't want to be driven by fear and up and move everyone and get down there and we just end up doing the same things there that we were here. So moving to MN has been on my mind. Back when Dr Warwick started the MN clinic had 16 patients and now has more than 500. I just wish the MN Clinic was here!
Here is a link if you want to read more
http://www.uofmchildrenshospital.org/Services/Services/c_195833.asp
Monday, July 7, 2008
Update
Hello! We had a great July 4th!! The city of Leander had the firework show at our driving range in our neighborhood this year and it was so much fun!! They had jumping houses for the kids (free!) and had booths set up for people selling stuff or advertising. A lot of the tents were giving away free stuff to the kids like beach balls, 4th of July fans, toys, ect so the kids felt like they hit the jackpot! One tent had the best BBQ ever!! We went at 4 with our BF and neighbors and had the best time! The kids ran around and all their friends from school were there. The firework show was awesome! I thought Jade would be scared but every time the fireworks went off she would say 'cooooolll' It was so cute! I would say this is one of the best July 4th's so far!!
We had a really fun rest of the weekend too. Paul took the kids to see Wall-E and liked the movie. We went to eat at Pluckers (a wing rest.) with our neighbors, Eric and Cherly and their kids (they are also in the pictures at 4th). I went shopping at Kohl's yesterday and found some really cute stuff! I also went to see my horse yesterday and she was sweet as ever! She is always sweeter when I go to see her but not ride. :) The lady that owns the place where I keep her told me yesterday that she is putting the place up for sale. She said she couldn't afford it anymore. So unfortunately we will have to look for a new place to board Precious. The Realtor wants all the horses gone before they put it on the market because that makes it look better. We have two months. Dinah told us (the lady that owns it now) that we could move Precious where she is moving her horses but that is in Georgetown which is about 30 to 40 min drive. Right now it is a 10 min drive. We are going to check around to see if anything is closer. I really hate to move. It is a great place and location where she is now but it will all work out.
Diet is going good. Nothing really new to report. I have been sticking too it and keeping up with working out. My clothes are fitting really good but I have not lost any more on the scale. This week I may add an extra 1/2 hour to a workout or two and see what happens with that.
Kyler and Branson are doing great. Nothing really new to report with their tune-up right now except they are doing great. We will go to the dr a week from this thurs to do pft's and see what their lung function is up to.
Hope everyone had a fun weekend and 4th!!
We had a really fun rest of the weekend too. Paul took the kids to see Wall-E and liked the movie. We went to eat at Pluckers (a wing rest.) with our neighbors, Eric and Cherly and their kids (they are also in the pictures at 4th). I went shopping at Kohl's yesterday and found some really cute stuff! I also went to see my horse yesterday and she was sweet as ever! She is always sweeter when I go to see her but not ride. :) The lady that owns the place where I keep her told me yesterday that she is putting the place up for sale. She said she couldn't afford it anymore. So unfortunately we will have to look for a new place to board Precious. The Realtor wants all the horses gone before they put it on the market because that makes it look better. We have two months. Dinah told us (the lady that owns it now) that we could move Precious where she is moving her horses but that is in Georgetown which is about 30 to 40 min drive. Right now it is a 10 min drive. We are going to check around to see if anything is closer. I really hate to move. It is a great place and location where she is now but it will all work out.
Diet is going good. Nothing really new to report. I have been sticking too it and keeping up with working out. My clothes are fitting really good but I have not lost any more on the scale. This week I may add an extra 1/2 hour to a workout or two and see what happens with that.
Kyler and Branson are doing great. Nothing really new to report with their tune-up right now except they are doing great. We will go to the dr a week from this thurs to do pft's and see what their lung function is up to.
Hope everyone had a fun weekend and 4th!!
Friday, July 4, 2008
Thursday, July 3, 2008
Kyler And Branson Are Home!
Yay! We got to come home today!! We will do the rest of the two week iv's at home! We are really excited because we live in a golf course community and they are doing the fire work show for the town of Leander right here on the golf course!! We will have front row seats and be right under the fireworks!! They got rained out last year so we cannot wait to see them!! Happy 4th to everyone! Kyler and Branson are doing great! And are glad to be home!!
Wednesday, July 2, 2008
Kyler and Branson Update Day 2
Hello! Everything went fine today. Branson was in a bit of a Dr Jekyll, Mr Hyde mood. Not real sure why because Branson is usually very very sweet at all times (just like me! LOL). Not sure if it was the meds or the fact that he is back in the hospital so soon from the last time but it was not real fun with him today. Kyler's is doing great! We did the pft (lung function test) and Kyler's are already back up to high 90's! Yay! and a lot of his numbers were over 100%!!! Which is awesome! Branson started to cry when it was time to do his and we couldn't get him to stop no matter how much we pleaded with him so his were worse than ever before but at his age they really don't know how to do it anyway and the doctor knows that. We will try again tomorrow. For Branson it really is just practice at this point they go by more how his X-Rays look, CT scans, how he sounds, ect. Over all Branson is doing great but the dr just wanted him to go in since he got that cold and his cough was junky. It is better to prevent. Well thats all I can type for tonight...I am falling a sleep as we speak. I want to tell you more about the Minneasota clinic like I promised but it will have to be another time. Thanks for all the calls and well wishes! Talk to everyone later!
ps. Have you ever wondered how much your clothes weigh? Well I weigh mine tonight (no shoes) and they weighed 1 pound. I was hoping they weighed 5. LOL!
ps. Have you ever wondered how much your clothes weigh? Well I weigh mine tonight (no shoes) and they weighed 1 pound. I was hoping they weighed 5. LOL!
Subscribe to:
Posts (Atom)
