Update

The boys had their Dr appt yesterday and they did great. Kyler's pfts are back up! Yay! Branson's were the same but the Dr doesn't think Branson is doing the test right. They both got their picc lines out today (we had to finish the antibiotics we had left) so the are very happy!

The Dr talked to us about a new med that is still in trials but they are having good results. They are going to get a trial here in Austin and we talked about putting the boys in the trial. The drug has been in trial for a few years so it is not as risky as a brand new drug and the data so far has
been really good. The only issue is if they do go into the trial they have to go off one of there inhaled meds called hypertonic which for us is a very important drug that works very well for both boys. Now if the new drug works then it won't matter but we also have the chance we will be in the placebo group and if that happens not only will we be on something that won't do anything for us but we also will be off the hypertonic so we have to really decide if we want to chance it. Anyway just something for us to think about.

Hope everyone is having a good day!