Today was Kyler and Branson's CF appt. Both boys gained 5 pounds! I knew they had gone through a growth spurt! Both also grew taller although I forgot to get the exact number. I know Kyler has really grown taller in the last couple of months. Branson's pfts were the same which means they were all over the place all the way from in the 50's to the 80's. They chalk that up to him being too young to really do it correctly. Kyler's pfts were down to 88 FEV1. Normally he is high 90's. But yesterday he started complaing that his ear hurt and today the Dr comfirmed he had an ear infection so the Dr thinks that is why his pfts are down. They started him on two antibodics for two weeks to knock it out. Both their lungs sounded great. Both boys do not culture anything and all meds are to stay the same except for the two antibodics for Kyler for the next two weeks.
Meds for both boys
abuetral
mucomyst
hypertonic
previcide
nasonex
ultrase mt12's
vitamins
vest 2x a day
Branson-
cephalexin (antibodic) every other month during winter months. We just started this this year and so far (knock on wood) it has worked out great!! Branson has a hard time with colds in the winter and so far so good!!
Kyler-
bactrin (antibodic) and something that starts with an L (antibodic) for the next two weeks to help with the ear infection and anything else that is going on inside.
On another note we ran out of Kyler's enzymes (ultrase mt12s) a few days before his next batch was due with the insurence. The pharmacy gave us one bottle to tied us over so today at their appt I asked for them to write us a new script for more so we wouldn't run out. Can you believe Kyler went through 1100 pills in one month for just food! They upped it to 1200 a month so we wouldn't run out. The amount of pills Kyler and Branson go through a month is amazing to me and they do it without one complaint! They are truely my heros without a doubt!!
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2 comments:
Glad to see the boys are putting on weight! Hope the ears are better soon! Best of luck in the new year!
Angela
What a great to report! Love to hear they're growing and their meds are working!
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