The kids went to their cf dr appt today. They both gained weight and both are taller! Yay! No change in the meds that they take which are enzymes with meals, Hypertonic Saline which is a inhale med, abuteral which is also and inhale med and N-acetylcysteine which is also an inhale med. They also take vitamins, singular, magnesium and prevacid. Both boys do not culture anything (knock on wood) which they check every time we go in for a doctor appt. They did good on their pft's which is what measures lung function. Kyler's have dropped a few points and the doctor talked about doing a tune up to see about getting numbers back up. He is usually high 90's and today was lower 90's. He wanted us to think about doing it in the next 3 months. Kyler has only had iv antibiotics 2 times in his life so we are pretty lucky with that. The doctor said we could go in and get the iv put in and then do the rest at home so that was good. I will let you know what date we decide. So thats about it. We went running tonight (Fun Run) and Kyler got 10 laps (9 is a mile and 1/2) and Branson got 9 so they did great with that as always! We did the fun run 3 times this week. Hope everyone has a good night!
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